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Tiredness and technology

I said that tiredness can make nystagmus worse. It's also worth remembering that having nystagmus is tiring in itself. I'm not aware of any scientific research into how tiring it is to have nystagmus, but from personal experience and listening to others I'm pretty sure that many of us with the condition do find it pretty fatiguing. I realise we're not unique in that respect and acknowledge that the same is true of many disabilities. And I would argue that the additional load of having any disability is often not fully understood let alone recognised, especially in education and the workplace.

As for technology in the form of low vision aids (LVAs) such as magnifiers, it can help people with nystagmus. But technology doesn't give us perfect vision and comes with a price - not just financial either. Using LVAs (low vision aids) is often tiring and can't be equated with someone who has ordinary vision doing the same task. Just try scanning a spreadsheet with a magnifier if you don't believe me.

And while on the subject of technology, I'm not aware of any simulation spectacles (sim specs) that really show what it's like to see through nystagmus eyes. On the other hand, researchers at Sheffield University have developed an app which gives a good idea of what it's like to have oscillopsia (the sensation that the surrounding environment is constantly in motion when it is, in fact, stationary) . You can find a link to the app at: https: //play.google.com/store/apps/details?id=com.UoS.OscillopsiaSimulatorbut remember this applies mainly to people who develop acquired nystagmus in adulthood.

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